YI Ting-wu,DENG Yao-tiao,SU Xiang-dong.Multi-center Study on the Status of Information Needs of Patients with Malignant Tumors and their Families[J].Medical Information,2019,(22):72-78.[doi:10.3969/j.issn.1006-1959.2019.22.023]





Multi-center Study on the Status of Information Needs of Patients with Malignant Tumors and their Families
(1.樂山市人民醫院腫瘤血液科,四川 樂山 614000;2.四川大學華西醫院頭頸腫瘤科,四川 成都 610041)
YI Ting-wu1DENG Yao-tiao2SU Xiang-dong1
(1.Department of Oncology and Blood,Leshan People's Hospital,Leshan 614000,Sichuan,China;2.Department of Head and Neck Oncology,West China Hospital,Sichuan University,Chengdu 610041,Sichuan,China)
Malignant tumorFamily membersInformation needsAnxietyDepression
目的 探究惡性腫瘤患者及家屬信息需求的現狀和影響因素,及其對患者心理狀況的影響。方法 本研究為多中心橫斷面調查研究,于2016年1月~2018年7月采用信息需求調查問卷、患者抑郁自評工具(PHQ-9)及廣泛性焦慮量表(GAD-7)對惡性腫瘤患者及家屬展開調查,并對結果進行統計分析。結果 多數患者及家屬認為醫務人員是主要信息來源,大部分患者及家屬對于患者病情的知曉表示滿意。對于“患者治愈可能性”“治療方法”以及“治療后復發轉移的可能性”,大部分患者及家屬認為自己從醫務人員或家屬處獲得了有關的信息;對于“預期壽命”,61.38%的腫瘤患者認為自己未從醫務人員以及家屬處獲得有關信息,53.47%的家屬認為自己并未從醫務人員處獲得有關“患者預期壽命”的信息;對于“患者治愈可能性”“治療后復發轉移的可能性”及“預期壽命”,認為自己“未被告知”的家屬比例低于患者;對于目前病情知曉表示滿意的患者以及認為自己了解日常生活注意事項的患者更不容易發生焦慮或抑郁。結論 多數患者及家屬并未從醫務人員處獲得關于患者的預期壽命的信息,患者對目前病情知曉的滿意程度及對日常生活注意事項的了解程度可能會影響患者焦慮、抑郁的發生。
Objective To explore the current status and influencing factors of information needs of patients with malignant tumors and their families, and their impact on patients' psychological status.Methods This study was a multi-center cross-sectional survey. From January 2016 to July 2018, the information needs questionnaire, the patient self-evaluation tool (PHQ-9) and the generalized anxiety scale (GAD-7) were used for malignancy. Tumor patients and their families began investigations and statistical analysis of the results.Results Most patients and their families believe that medical personnel are the main source of information, and most patients and their families are satisfied with the patient's condition. For "patient cure possibilities", "treatment" and "possibility of recurrence and metastasis after treatment", most patients and their families think they have obtained relevant information from medical staff or their families; for "life expectancy", 61.38% Tumor patients believe that they have not obtained relevant information from medical staff and their families. 53.47% of the family members believe that they have not obtained information about "patient life expectancy" from medical staff; for "patient cure possibility" and "relapse and metastasis after treatment" "Possibility" and "life expectancy", the proportion of family members who think they are "uninformed" is lower than the patient; patients who are satisfied with the current condition and patients who think they understand daily life are less prone to anxiety or depression.Conclusion Most patients and their families do not receive information about their life expectancy from medical staff. The patient's satisfaction with the current condition and the level of understanding of daily life concerns may affect the patient's anxiety and depression.


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更新日期/Last Update: 2019-11-15